Under 16 Cancer Patient Experience Survey

The Under 16 Cancer Patient Experience Survey informs how the NHS delivers cancer services with the aim to radically improve the outcomes for children and young people affected by cancer. 

The survey has been running since 2020 and the results provide national-level insight into the experiences of children with cancer and informs how the NHS delivers cancer services going forward. Commissioners, providers and national policymakers use the results to assess performance both locally and nationally, to help identify priority areas for enhancing children’s cancer services. The aim is to radically improve the outcomes for children and young people affected by cancer. 

The third wave of the survey is being implemented across England from April 2023. Children under 16 who received NHS cancer care during 2022 and their parents or carers will be invited to participate. They will be able to complete a paper questionnaire or an online version of the survey on any device.

If you or a colleague is asked about the survey by a patient, please encourage them to complete and return the survey.

More information about the survey is on our webpage.