Lymphoedema

Lymphoedema is a very common side effect of cancer treatment. It is caused by failure of the lymphatic system, which can lead to swelling, skin and tissue changes, and an increased risk of infection. Anywhere in the body can be affected, but lymphoedema most commonly occurs in the area where you have had cancer or where you have had cancer surgery, with or without radiotherapy.

Lymphoedema can occur immediately after cancer treatment or many years afterwards. If you think you have lymphoedema, you should contact your GP or cancer healthcare professional team for advice and to receive a referral to a specialist lymphoedema service.

Lymphoedema specialists are usually nurses or physiotherapists who will carry out a thorough assessment and examination of the affected area, confirm the diagnosis, and develop a personalised treatment plan with you to help manage your symptoms and risks.

Here is a range of useful tools and resources to help if you, or a friend or relative, has lymphoedema; 

• Just diagnosed? The Lymphoedema Support Network is a national, patient led charity that helps support and educate patients, their families and healthcare professionals about lymphoedema. They have a range of resources on their website, including tips for managing your lymphoedema.
• Video to explain what lymphoedema is.
• Useful tips and resources from the British Lymphology Society.
• Patient stories on their experience of lymphoedema.
• The UK NHS Lymphoedema Network Wales specialists and patients have created a collection of 13 short films to help you understand and manage your lymphoedema.
• Search cancer services in your area via Cancer Care Map.